Any Help please

[angus]

My wife has been diagnosed with MS she is now on daily inj. of copaxone does anybody have any holistic or even radical health info that may help, Doctors don't know crap and if they do they won't tell you because they won't get their kick back from the phar. co.
any help would be great.
Thanks

 

[whitey615]

My sister was diagnosed over 10 years ago. Shes also a personal trainer and she is convinced that eating organic food helps. She also works out like a fiend. I know she's tried copaxon and avonex. The avonex had terrible sides and now shes on tysabri with great results.

 

[Onlychevy6]

My mother was diagnosed back in 1995 and it was actually back dated farther than that. I will find out what she has been taken. She has been on and off of so many different things it is crazy. Did the doctors happen to mention what stage of MS she is in?

 

[angus]

MS

Yes it actually started with headaches,after a MRI, they discovered she had ocular neuritis which was then diagnosed as whites matter disease after mega doses of prednoslone, and further test a spinal tap they diagnosed MS that has been underlying about 8-10 yrs. she's been on copaxone for 2 months and switched to a Mediterranean diet and has begun working out, I was looking for nutrients or other forms from anybody that might help,
Thanks to all for your help

 

[Onlychevy6]

I found some old information and thought I would share. Also my mom has been taken Backlofan to help control Muscle Spasms, Valium to help relax the muscle, and Ditropan for bladder issues that happen with MS patients.

Supplements



A daily regimen of supplements is an important part of the nutritional strategies for MS. The basic recommendations below are completely safe and have the potential to be of significant benefit.
Basic Supplements - Essentials

• Vitamin D3: 6000-8000 IU
  • This is best gotten from pills not associated with any vitamin A.
• Omega 3 Essential Fatty Acids: 5 g of EPA+DHA
  • This is best gotten from fish oil such as salmon oil (.3 grams EPA + DHA per 1 gram capsule). 1-2 tablespoons of cod liver oil is also an option but ensure that vitamin A content does not exceed 5000 IU. The addition of 1 tablespoon of flax oil can be of value because it contains alpha linolenic acid, a precursor to EPA and DHA.
• Calcium: 1000-1200 mg
• Magnesium: 500-600 mg

Basic Supplements - Vitamins

• Vitamin A: 5000 IU
• Vitamin B complex: 100 mg
• No flush Niacin (B3): 2 g
• Folic acid: 400 mcg
• Vitamin B12: 1-2 mg
• Vitamin C: 1 g
• Vitamin E (natural): 400 IU

Basic Supplements - Minerals

• Zinc: 25-50 mg
• Copper: 1-2 mg
• Selenium: 200 mcg
• Manganese: 20 mg
• Iodine: 200 mcg

Basic Supplements - Antioxidants

• Grape Seed Extract: 2-4 capsules
• Ginkgo Biloba: 120 mg
• Alpha Lipoic Acid: 1200 mg
• Coenzyme Q10: 60-90 mg
• EGCG Max (epigallocatechin-3-gallate): 2 capsules (700 mg each)
• Quercetin: 400 mg
• Bromelain: 400 mg

Basic Supplements - Probiotics

• Acidophilus - 6 to 9 capsules (2 to 3 with each meal)

Designer Supplements

Some special supplements are also potentially of value. These can be quite expensive and thus they are included in a separate list.

• N acetyl cysteine (NAC): 500 mg This supplement can increase glutathione level which increases antioxidant capacity.
• Inosine: 2g
  • This supplement increases uric acid level which neutralizes perioxynitrite. Note that gout can occur if one’s uric acid level is too high. The trick is to have one’s uric acid level as high as possible without inducing gout.

 

[Onlychevy6]

Natural treatment for multiple sclerosis MS
At this point it is very difficult to know with any certainty which supplements, in what dosages, and in what combination (s) would be helpful for multiple sclerosis, if at all. We also have little idea how these supplements interact with medicines currently used for multiple sclerosis. My aim is to just mention the research regarding the role some nutrients may play in this condition. If you have MS, make your doctor aware of some of these preliminary studies, and perhaps he or she would want to monitor you while you give them a try. There is no definite proof yet that these supplements will help. Much more research is needed before natural options are considered. It is possible that someone's condition may get worse by stopping their existing medicines and using natural supplements exclusively. It is also possible that certain natural supplements may lead to a slight reduction of the necessary pharmaceutical medication dosage. If you do plan to use these supplements, keep the dosages low at first until you have a grasp on how they are influencing your condition or whether they are interfering or improving the actions of the pharmaceutical medicines.

Alpha lipoic acid has been helpful in a mouse study and recently showed biochemical marker improvement in a human trial. A dose of 10 to 25 mg of R lipoic acid may be appropriate. Most R lipoic capsules come in 50 mg, so, opening a capsule and taking a portion is one option.


Carnitine has been found helpful in reducing fatigue in patients with multiple sclerosis.


Curcumin blocks the progression of multiple sclerosis in a laboratory study.

 

[Onlychevy6]

Hope any of this helps. I have done a ton of research on MS over the years. It is an issue that needs a lot more research to help find a cure. And to be honest it is very difficult to watch how one reacts as they get in the later stages. Like my mother for example she is in the last stage of MS and lives on medicine. If there was a cure today there is nothing that can be done to save her. She has been given a time frame a few different times but by the grace of god and her being stubborn she is currently still with us for now.

 

[angus]

Thank you so much for this valuable info. I've just begun to research and figured this would be a great place to start this community has been very helpful, I will push on and take the advise serious as she will need to make life altering changes if I hear or find something I will pass it on for future use and please do the same.
Regards.

 

[angus]

Thank you so much for this valuable info. I've just begun to research and figured this would be a great place to start this community has been very helpful, I will push on and take the advise serious as she will need to make life altering changes if I hear or find something I will pass it on for future use and please do the same.
Regards.

 

[Onlychevy6]

No problem. Try to keep her active and workout as well. If she gets to a point where she is just sitting around it will only get worse. I fought for years teling my mom she needs to stay active and of xourse she listened to her original doctor who said not to workout. She packed on the lbs. And when she switched doctors the first thing he said was the other doctor was not an MS specialist and yes you should have stayed active. Be prepared your self there will be many changes for everyone involved. If there is any thing else you need feel free to ask.